Asymetry

There seems to be so much progress now with Ella that it is hard to pick out the more important milestones. The progress is so gradual yet so pervasive that it is hard to put a finger on it exactly. One of the main things I’ve noticed is in equipment. We’ve striped the Kid Cart down to a minimum which means that it works almost like a regular high chair on wheels. On the advice of Ella’s water therapist (Donalee) I took off the head and waist supports. Now Ella has a jumpy chair and over the weekend we got her a walker seat which she sits in, can rest her feet on the floor and propel herself around by foot. She’s not going anywhere yet but it is great to see her sitting up in that with her feet on the flloor! She is also very much into the game: Push Toys Off The Tray And See If Someone Picks Them Up. Invariably someone does. Ella is constantly moving, kicking and banging and patting and scratching and….. I feel so positive about her potential for development that I think sometimes that the main problem she’ll have is how she looks. We keep hearing from cranio-facial specialists how “they can’t do this” and “they can’t do that” which leaves us (me) feeling hopeless. At this point Ella only has teeth showing on the right (big) side of her jaw. There they have grown in crooked, sharp and with big spaces between. I think her eye is getting more saggy on that side too. Her ear is huge. And doctors have told us — it will probably get worse. Great. Wouldn’t hemimegalencephaly have been enough to deal with…….

This entry was posted on Tuesday, July 30th, 2002 at 10:59 am and is filed under Ella's Log. You can follow any responses to this entry through the RSS 2.0 feed. Responses are currently closed, but you can trackback from your own site.

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